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Living With CMT - Julia's Story
I remember the day clearly, even though I was 4. One of my first memories was getting my first pair of leg braces after being diagnosed...

Katerina Lea
Sep 4, 20233 min read


Creativity In Seasons Of Pain - Olivia's Story
I want to introduce you to my new friend Olivia. She is also a young adult living with more than one chronic illness and we recently...

Katerina Lea
Aug 28, 20234 min read


Creativity In Seasons Of Pain - Melissa's Story
Hi there, I want to introduce you to the first blog post of this series, Creativity In Seasons of Pain. Adapting to daily struggles of...

Katerina Lea
Aug 14, 20234 min read


Embracing The Differences
On a Friday evening in May, I started to get ready for my college semi-formal. I wore a light pink dress and white shoes. Instead of...

Katerina Lea
Jul 31, 20232 min read


What's Your Footprint? A Reflection From Camp
I was slowly walking on the pathway at camp when I noticed others wearing leg braces, and for the first time, I didn’t feel alone… Last...

Katerina Lea
Jul 17, 20233 min read


Letter To A Friend
Dear friend, I know how hard it is to wait for a diagnosis—the uncertainty, tears, and feeling unsure if the symptoms are all in your...

Katerina Lea
Jun 27, 20232 min read
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