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Living with CMT - Lv's Story
“Cô gái có đôi bàn chân yếu”, I’ve learned that this nickname doesn’t define me, but it adds to my story. And that story has made me strong... Hello there! I am Lv Vo, a 19 year old university student in Salt Lake City, Utah. Being born into a family of Vietnamese immigrants, disability was not something we discussed openly. My CMT was more prominent and easier for my family to notice. I grew up very aware that my body was different. My grandparents would introduce me as cô

Katerina Lea
Sep 143 min read


Living with CMT - Lauren's Story
CMT is a part of my life, but it isn’t my whole life. Hi everyone! My name is Lauren Blanchette, I’m 23 years old, and I’m from Rhode Island. I graduated from the University of Rhode Island last year with a Bachelor’s degree in Business Management and Sports. I’ve always loved sports and being around people, and I’m currently looking for a career in Sports Management. My dream job would be to work as a Team and Family Services Manager for a professional sports team. And if yo

Katerina Lea
Sep 73 min read


Anticipating The Next Chapter - Graduate School
I was nervous stepping into the interview. My hands shaking, not just because of the tremors. I sat at my desk, waiting for the zoom meeting to start and mostly praying that I would able to answer the questions with confidence and clarity. A few months ago, I shared about how I was applying to graduate school. The process involved researching universities in my area, , looking into programs that would still take acceptances for the fall, and figuring out finances. I did expe

Katerina Lea
Jun 222 min read


Conversations Are Not Always Random - They May Help Someone
A lady approached me at Target. I was browsing the clothing sections, when I quietly heard "excuse me." coming nearby. I assumed she was trying to walk by, but that wasn't the case. I rarely go shopping. But, when I do, I usually have a list and know exactly what I'm looking forward. This is because of the severity of pain and fatigue I experience when walking. If I'm on my feet too long (even as little as ten minutes), I may not be able to do as much the next few days. But,

Katerina Lea
Feb 92 min read
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