top of page
Search


Living with CMT - Lv's Story
“Cô gái có đôi bàn chân yếu”, I’ve learned that this nickname doesn’t define me, but it adds to my story. And that story has made me strong... Hello there! I am Lv Vo, a 19 year old university student in Salt Lake City, Utah. Being born into a family of Vietnamese immigrants, disability was not something we discussed openly. My CMT was more prominent and easier for my family to notice. I grew up very aware that my body was different. My grandparents would introduce me as cô

Katerina Lea
Sep 143 min read


Living with CMT - Lauren's Story
CMT is a part of my life, but it isn’t my whole life. Hi everyone! My name is Lauren Blanchette, I’m 23 years old, and I’m from Rhode Island. I graduated from the University of Rhode Island last year with a Bachelor’s degree in Business Management and Sports. I’ve always loved sports and being around people, and I’m currently looking for a career in Sports Management. My dream job would be to work as a Team and Family Services Manager for a professional sports team. And if yo

Katerina Lea
Sep 73 min read


Living with CMT - Elianna's Story
When I went to a camp for kids with CMT, I was a little nervous because I wasn’t sure what that week was going to be like. But, the...

Katerina Lea
Sep 22, 20253 min read


Living with CMT - Olivia's Story
“Why do you run on your tippy toes?” my cousin asked when we played soccer together as kids. It was a little weird, but we laughed about...

Katerina Lea
Sep 15, 20254 min read
bottom of page
