“Cô gái có đôi bàn chân yếu”, I’ve learned that this nickname doesn’t define me, but it adds to my story. And that story has made me strong... Hello there! I am Lv Vo, a 19 year old university student in Salt Lake City, Utah. Being born into a family of Vietnamese immigrants, disability was not something we discussed openly. My CMT was more prominent and easier for my family to notice. I grew up very aware that my body was different. My grandparents would introduce me as cô

When I went to a camp for kids with CMT, I was a little nervous because I wasn’t sure what that week was going to be like. But, the...

On a Friday evening in May, I started to get ready for my college semi-formal. I wore a light pink dress and white shoes. Instead of...

Do you ever experience moments in your journey that feel draining? And then you are trying to stay on top of the list of tasks, but then...