Katerina Sep 4, 20233 minLiving With CMT - Julia's StoryI remember the day clearly, even though I was 4. One of my first memories was getting my first pair of leg braces after being diagnosed...
Katerina Aug 28, 20234 minCreativity In Seasons Of Pain - Olivia's StoryI want to introduce you to my new friend Olivia. She is also a young adult living with more than one chronic illness and we recently...
Katerina Aug 14, 20234 min Creativity In Seasons Of Pain - Melissa's StoryHi there, I want to introduce you to the first blog post of this series, Creativity In Seasons of Pain. Adapting to daily struggles of...
Katerina Jul 31, 20232 minEmbracing The Differences On a Friday evening in May, I started to get ready for my college semi-formal. I wore a light pink dress and white shoes. Instead of...
Katerina Jul 17, 20233 minWhat's Your Footprint? A Reflection From CampI was slowly walking on the pathway at camp when I noticed others wearing leg braces, and for the first time, I didn’t feel alone… Last...
Katerina Jun 27, 20232 minLetter To A Friend Dear friend, I know how hard it is to wait for a diagnosis—the uncertainty, tears, and feeling unsure if the symptoms are all in your...